Another Day

Although this is a blog about Alexander and Matthew, I thought I would include a picture of Christopher (as I don't have any pics of Matthew today).  Christopher seems to have made some friends he likes to play with at school....here he is with Arden.


The Good

Matthew had a pretty stable day today.  He is up to 17cc of food, and is tolerating his food well.  Hopefully that continues as he eats more food.  His oxygen was a little lower than yesterday, which we attribute  to Lynn being back as his primary nurse - he loves Lynn!  He does not seem to love the little vibrator that they do on his chest however, as he often tries to push it away.  But hopefully it continues to help him.  He has also tolerated the increased caffeine, which is good.  He also was a little more alert today.


The Bad

Matthew still seems to suffer from apnea epidsodes, which the doctor thinks that is the cause of his desats.  His sodium was also a little low from the diuretics, and the doctors want to make sure he is gaining enough weight (fat weight, not water weight).  Hopefully he continues to pack on the ounces to get bigger and stronger.   If his sodium comes back up, they may start him on two diuretics he will get with food in the hope that this clears out fluid.


The Ugly

No Ugly for Matthew today - fingers crossed it stays that way.  Sean went to the funeral home today to continue making arrangements for Alexander.  We picked out an urn for his remains.  On the three week anniversary of his passing, it is still difficult.  There is another twin that is in his spot at the NICU, next to Matthew.