Some Good News

Yesterday and today we got two pieces of good news.

1.  Our geneticist let us know that Matthew tested negative for CPT1A - the second metabolic disorder.  He is now back to just one rare metabolic disorder!

2.  Matthew's Stage 2 ROP has regressed.  The eye doctor said that his ridge flattened and his vessels should be growing soon!

Staying warm

Well, it was officially the coldest day of the winter.  Given the winter so far that's not saying much but the -9 degrees this morning begs to differ.  The pipes in the back room of the house froze, so that was unfortunate.  Matthew has spent most of his time in the upstairs of the house - nice and toasty.

Here's a video of him yesterday playing the piano with his feet.  He seems pretty proud of himself.

Another pic from today of him enjoying the pacifier (he doesn't use it often but he seemed to like it today).  Note that the onesie is a (larger) preemie size.  He seems to be almost outgrowing all of the different preemie clothes.

3 months

Today is Matthew's 3 month birthday.  It's hard to think of him as a 3 month old, as his adjusted age is 4 days.  That is definitely more how we think of him, as he is far from what a 3 month old would be able to do.

Matthew has been doing well with his tummy time.  Sometimes he picks his head up a little, and sometimes he kind of just lays there.  I try to do some stretches with his legs every day as the pediatrician said his legs were a little tight.  He has been doing great with his bottles though, and is up to around 65ml per bottle.  He doesn't have any doctors appointments this week (amazingly!) but if we get the change of insurance straightened out we can have the visiting nurse come and do a weigh in.

Here are some pics of Matthew to celebrate his 3 month birthday.  Feel free to post a comment and vote for which pic you like the best - I couldn't decide so I posted them all.

This first pic captures one of Matthew's newest faces - the Elvis face.

Still Premature

Today Matthew went to the eye doctor for a follow up - his first of many Yale follow ups.  Unfortunately his ROP has progressed to Stage 2, which we knew was a possibility.  He will be seen again in two weeks, and Dr. Stossel said it is just a wait and see.  She said he is not a candidate for laser surgery and so hopefully sometime soon the ROP will begin to regress.  For some babies it takes a month after their due date and some babies she sees for 8-9 months.  We have to see which way Matthew is going to go.   She did say that he is looking around a lot, and while he is not at the point of tracking objects he does seem to be very interested in looking at what is around him.

Here's a picture from yesterday - another one of Matthew's faces.  This is an introspective Matthew....

Side note:  For any of my math dept folks that are reading this, Christopher's school has been teaching him shapes.  There's your basics, but they have added on the trapezoid and the "romulus."  He seemed adamant that it was romulus and not rhombus, so I fear this may have actually been what was taught to him (and also makes it seem like there is another shape in addition to the rhombus which we have, of course, already discussed with him at home!  Perhaps this is the new Common Core PreSchool Geometry standard...)