As we walked into Yale today, we were accosted by the March of Dimes support person wanting us to be part of the footage for Fox 61 (Hartford) news as part of a news segment for National Prematurity Awareness Day! I had to go pump, but Sean agreed. We thought it was just going to be B-roll footage, but as it turns out Matthew and Sean became the feature of the story:
http://fox61.com/2015/11/17/finding-hope-in-the-nicu-at-yale-new-haven-childrens-hospital/
Most parents come into the NICU with very little time to prepare. Having ruptured at 15 weeks, Sean and I knew that we were going to need the NICU (though we hoped perhaps we would make it long enough not to), and likely for a long time. Even reading all of the blogs, you still can not fully prepare yourself for the emotional exhaustion that comes along with having your child in the NICU. We truly believe the staff at Yale is the best, and are constantly amazed by them.
Some updates on Matthew
The Good
Matthew's humidity settings were lowered a little today, and his feedings went up to 7cc twice a day. At this point they can choose to go beyond protocol and let Matthew dictate if he is ready for more. He had his first breast milk poo today - the yellow mustardy poo. Not the dark meconium poo.
The biggest news for today was that Matthew was extubated. They didn't do a pressure test - Dr. Levit made the decision with the team to take the tube out and see how he does. His first blood gas was good, but by the evening it seems that he was working hard and getting tired. They were going to see how he did but they may need to reintubate.
The Bad
Matthew seemed to be a little finicky this morning. He apparently threw a "tantrum" in the morning and he was on higher O2 settings this afternoon relative to the day before. He is struggling a little off the vent so he may need to go back on.
The Ugly
No ugly for today - fingers crossed it continues that way.
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