St. Christopher

Today Christopher hung out at the house while Sean and I took turns going to see Matthew.  They started rounds late today, so I was able to sit in for rounds for Matthew for the first time.

In the afternoon Orly was leaving with another woman, who came up to me and said her daughter always asks about me.  Her accent threw me off, and I thought perhaps she mistook me for someone else.  It took me a until well past I saw her to put together that the woman's daughter was someone name Orshi, who was on the 10th floor (maternal special care) with me.  We went for a few walks in the Healing Garden together.  She was there for placental issues, and much like me had a long road of pregnancy issues before her current one.  She had given birth to a 4 1/2 pound baby girl about two weeks into my stay there.  Before she left she gave me an Alex and Ani St. Christopher bracelet for strength and protection that I still keep at my bedside.

The Good

Matthew had a stable day today.  Orly took his pressure down a hair overnight, and took his breath rate down twice today.  He is still tolerating his feeds well and he gained another 40g (he is up to about 3 1/2 pounds, or 1580g).  His nurse today, Betty, had him burrito'd as Matthew felt like pulling out his feeding tube (mid-feed!) and almost succeeded.  Matthew has very few "tools" at his disposal, but the ones he has he likes to use:  pulling on his tubes, pooping all over the place, and desating when he wants something (or because he wants to beep high on 22% oxygen but and trick nurses into putting him down to 21%/room air and then beeping low).

The Bad

Matthew's settings for his NIPV are still fairly high.  We are hoping that he is able to wean them down.  He was also still a little puffy around the eyes today.


The Ugly

No Ugly today for Matthew - fingers crossed it stays that way