Sunday, December 13, 2015

Home Alone

Sean left this afternoon for Florida, so it's just Christopher, me and Mr. Cags (Indiana is at Sean's parents).  Tomorrow Dr. Montgomery joins the care team.  Sean remembered her from the night we spent saying goodbye to Alexander.  I can't place her face (maybe tomorrow) but whatever doctor we had that night was very nice.

The Good

Matthew had a pretty stable day today.  They went down on his pressure by 1 and he seems to be tolerating that.  He has continued to tolerate his feeds, and they went up to 29cc today.  He also was able to continue to gain more weight (another 40g) and today he looked less puffy.  He did two poops before I got there, but he saved one more for me in the afternoon.  Luckily this time it didn't require getting a bedding change.


The Bad

Matthew's NIPV settings are still fairly high.  He doesn't seem to tolerate big changes downward.  Hopefully he continues to tolerate the small ones so that we can make progress!  I haven't wanted to take him out of the isolette because he's been so sensitive to noise/everything.  We shall see what Lynn thinks when she is back tomorrow.


The Ugly

No Ugly for Matthew today - fingers crossed it stays that way.

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