A rare pic

Today I got a rare picture of Matthew of his bare face while Lynn was changing his canula.  He looks so handsome!  I sent the pic to Sean who then for a moment thought he was off the NIPV....no such luck.  But at least we got the picture.  He looks like a regular little baby in it!

The Good

Matthew has tolerated the changes in NIPV settings from the other day.  He has also tolerated his feeds and was breathing comfortably for a good part of the day.


The Bad

Matthew still needs his NIPV settings to come down.  He was able to do kangaroo for a little over an hour today, but then he got very upset and started to cry (though its nice to hear his voice!).  His weight was down 10g tonight, which is unfortunate because he was on such an upward trend.  His geneticist had brought down his calories a hair to something more appropriate for his weight.  Hopefully he gets back to gaining weight.


The Ugly

No Ugly for Matthew today - fingers crossed it stays that way.