Getting back to normal

Christopher was mostly better today, and is getting back on his routine, which is good.  This means he is eating is better, his sleeping is better, and most importantly his behavior is better.  Sean is feeling a little better, though not 100%.

The Good

Matthew was able to rebound a little bit today from his Christmas dip.  He is still not at the previous settings, but he was able to go down on the oxygen versus yesterday, even while sleeping on his back.  He also gets his primary night nurse, Cassie, tonight and his primary nurse Lynn tomorrow (unless Lynn gets called away, which I hope is not the case).  He gained weight tonight, and has gained a half an inch in length over the past week.  He is now 16 1/2 inches long.


The Bad

Matthew is still on the CPAP setting of 6, which is higher than he was before his ram canula attempt, which was 5.  Orly said she is going to recommend him staying on his current settings for a week to let him recover.  I'm not sure if that is an actual week, or a week in Orly time, which is more like 3 days.  I'll chat with Dr. Montgomery tomorrow who is taking over for this week.

I did ask Orly about Matthew and his weight, as the past few days he hasn't gained much.  She was confident he was getting more than enough calories.  Tonight he gained 2 1/2 ounces, which is enormous.  At first we thought maybe the weeks he did well were because he was gaining weight, but it may be the opposite.  Because he is breathing easier he is able to gain weight.  On the days he works more to breathe, like the past two days, he doesn't gain weight because he is spending all that energy trying to breathe.


The Ugly

No Ugly today for Matthew - fingers crossed it stays that way