Songs

Today was a busier day in the NICU.  The woman that sings songs to the babies came by and we sang together and started crafting a song special for Matthew.

Another baby, who has also been there since November, had to be put back on CPAP.  I heard Orly say "blood gas" and "he's really retracting" which was a flashback to what they used to say about Matthew...


The Good

Matthew had a stable night and day.  He seems to be doing well off the cannula.  He also seems to like his MAM bottles, and he is doing well with those.  He has gotten more aggressive and hungry at the start of the feeds, so we just need to make sure we pace him!


The Bad

Matthew's MRI results came in today.  Overall it was OK - there is a small dark spot in the cerebellum region that most likely represents a small bleed that was there at some point.  There's no follow up, and Orly said she is not concerned.

The carnitine results for both last week and amazingly yesterday came through.  Last week's numbers were down a bit, but this week's were back up.  We did send out Matthew's blood to be tested for CPT1A, but that won't be back for around a month.

The rash on his butt is mostly gone, but there was a little red area today when I changed him.


The Ugly

No Ugly today for Matthew - fingers crossed it stays that way